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Findable · Accessible · Interoperable · ReusableBuilt on FAIR principles.
Data that can be found, used and shared across systems and borders. Knowledge can grow, evolve and improve over time.
A European health data company
Health data,
made human.
We make health data usable across care, research and public health.
"We finally felt listened to." Working sessions with patients, clinicians and researchers — every week, on the whiteboard.FAQIR Institute
In collaboration with
About us
We make health data work for people.
Health data is often locked away. It is spread across registries, hospital systems, research silos, applications, devices and sensors. We believe it only creates value when it is findable, trustworthy and easy to use.
We work with patients, clinicians, researchers and policymakers to turn data into tools and systems that work in everyday care and research.
Together with the FAQIR Foundation and our product Qwenda, we build the infrastructure, standards and solutions that make health data work in real life.
Note: FAQIR Institute operates as part of a broader ecosystem. The FAQIR Foundation leads the non-profit mission and safeguards patient-centered data principles. FAQIR Institute delivers the tools, support and implementation. Qwenda is our product platform.
Hans Constandt & Filip PattynCo-founders
How we make health data work in real life.
FAIR, plus a Q for Quality.
Bringing clarity and calm to complex health data.
Built on the 'FAIR data principles', with Quality at its core.
- F01 / 05
Findable
Available when it matters.
If data cannot be found, it cannot be used. We make it easier to find when it matters, so the right answer is never hidden.
- A02 / 05
Accessible
Consent first. Respect by design.
People know what data is available, how to access it, and how to use it. They decide what to share and can change that at any time.
- Q03 / 05
Quality
The standard we never lower.
Quality makes data reliable and useful. We take the time to get it right, so it can be used with confidence in care, research and policy.
- I04 / 05
Interoperable
Speaks the same language everywhere.
Health data often starts in local formats. We help translate it into shared standards so it can be used across systems and borders.
- R05 / 05
Reusable
Useful beyond a single purpose.
Data should be usable beyond its original purpose. We make it easier to reuse data and insights, so each new step builds on what already exists.
Part of the FAQIR Foundation ecosystem
One mission. Two entities. Built to work together.
The FAQIR Foundation holds the mission. FAQIR Institute turns it into practice through Qwenda, its patient-centered data platform.
Together, the Foundation and the Institute form an ecosystem designed to keep health data patient-centered while making it work in real life.
Holds the mission
Independent, patient-centered foundation that safeguards the principles and supports the growth of FAIR health data across Europe.
faqir.org →You are here
FAQIR Institute
Applied research and implementation
We turn health data into real-world solutions, working across research, care and patient communities.
The Institute's patient-centered data platform
Qwenda brings research into daily practice, helping health data work for patients, clinicians and research networks across Europe.
qwenda.com →Qwenda
Your health data, easy to use and in your hands.
Qwenda is an app that helps people understand, use and share their health data on their terms.
It starts with the patient. From there, data can be shared to support care, research and the wider community.
From disconnected data to a clear health picture you can work with.
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You are in control
People have a personal space to access their data across sources. They decide what to share, with whom and for how long.
- 02
Designed to be easy to use
People can quickly understand what matters and act on it with confidence.
- 03
Works across systems
People can use their data across services and organizations, free to move when needed, while it stays connected to its source.
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Built to last and grow
People work with data that is structured from the start, so it can be reused, shared and improved over time.
Qwenda · Haemophilia Registry
app.qwenda.com
Active patients2,430+3.4% WoW
FAIR score98.4%Excellent
Federated nodes14All online
Consent events — last 12 weeksLive
UZ Gent · Karolinska · Radboud UMC querying live
FAIR. Quality. Human.
How we make health data work in real life.
These three principles aren't decoration. They describe how we design every study, standard and system we touch.
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Accuracy · Traceability · TrustQuality before quantity.
We take the time to get the data right, so it can be trusted and used with confidence in real life, where it truly matters.
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Patients · Clinicians · ResearchersPeople at the core.
We start with the patient, who decides what to share, and build solutions that work for clinicians, researchers and the wider community.
Founders
Two people, one mission. Built to make health data work.
Hans Constandt
Founder & CEO
Brings together research, care and patient communities across Europe, drawing on his experience building and advising health tech ventures.
Focused on turning health data into practical impact.
Filip Pattyn
Founder & CTO
Professor and international expert in open data and standards.
Builds the systems that make health data usable across organizations and borders, turning FAIR principles into tools that work in daily practice.
Careers
Build with us.
A small, fast-moving team in Ghent. Healthcare impact, real ownership.
Engineering
Backend Engineer (Full Stack)
Design robust backend systems with real-world healthcare impact, alongside a small product team in Ghent.
Stay close to what we're building.
A frequent dispatch on FAIR health data.
Updates on how health data can work better in real life. For people, care and research.
Or follow us for shorter updates and conversations on LinkedIn.